Les Roches International School of Hotel Management, Marbella has dedicated their Sustainability Week, 10-14th November, to the Butterfly Children Charity (DEBRA Spain) raising an impressive €1228 for the cause.
Throughout the schools sustainability week DEBRA merchandise was sold to the students in exchange for a passport to participate in the ‘casual clothes day’, a group of students made and sold fresh smoothies to fellow students and teachers and a ‘Family Cookery Class’ was held.
The cookery class was enjoyed by 8 families who, led by Les Roches head chef, made and designed their own pizzas and chocolate cookies. The families loved the experience and especially enjoyed eating the yummy pizza and cookies afterwards.
Together these fantastic efforts raised €1228 for the Butterfly Children. This money will contribute to the charity’s main projects of visiting new born butterfly babies anywhere in Spain, carrying out home visits, holding an annual National Meeting for the families, attending a specialist clinic in Hospital La Paz, Madrid and daily telephone support for those affected and their families.
About the Butterfly Children charity (DEBRA Spain)
Founded in 1993, DEBRA is a non profit-making organization formed to provide support and to improve the quality of life of those affected by Butterfly skin and their families in Spain. The charity works hard to provide the following:
- Emotional and medical support to families and carers, as well as social services professionals with information and guidance.
- Fully trained nurses who travel throughout Spain visiting families in their own homes.
- Information and advice on all aspects of the disease, coordinating with doctors and health services to ensure patients receive the correct treatment.
- Support for research programmes into a possible cure.
- Media campaigns to promote awareness and raise funds through numerous events and charity shops.
- A number of yearly national meetings to bring affected people together, as well as conferences for medics and other professionals.
- A link to DEBRA in all other countries. Member of DEBRA International
- Continuous work to obtain private and public grants.
About the Butterfly Skin condition
Butterfly Skin (Scientific name Epidermolysis Bullosa or EB) is an incurable, rare and terrible genetic condition that affects the skin. It causes the skin to endlessly blister, shear and scar. In severe cases it hurts to walk, eat and bathe.
The skin can be so sensitive that the body must be wrapped in gauze to protect it from the mildest friction. Even the brush of a bed sheet can cause another burn-like blister. Blistering also occurs internally (in the mouth, oesophagus, intestine, airways, urinary tracts and even the inside of the eyelids) leading to further suffering and serious health problems.
Butterfly skin also becomes a disability because people suffering from this condition require intensive daily care from their relatives. They also tend to lose the use of their hands and feet due to the extent of the blistering and the retraction of the skin in these areas. Life expectancy is unfortunately short; hence the majority of our members are children.
PHOTOGRAPHS ATTACHED: A selection of cookery classes, staff wearing DEBRA butterfly pins and the cheque presentation.
Elle, along with Alan, is the owner of Spain Buddy and the busy web design business – Spain Web Design by Gandy-Draper.
Born a “Norverner”, she then spent most of her life “Dann Saff” before moving to Spain in 2006. Elle’s loves are Alan, the internet, dogs, good food, and dry white wine – although not necessarily in that order.